TY  - JOUR
T1  - EXperience of an adolescent living with and dying of cancer
AU  - Flavelle SC
Y1  - 2011/01/01
N1  - 10.1001/archpediatrics.2010.249
JO  - Archives of Pediatrics & Adolescent Medicine
SP  - 28
EP  - 32
VL  - 165
IS  - 1
N2  - Objective 
    To provide a unified description of an adolescent's experience of living with and dying of cancer.Design 
    Qualitative analysis using phenomenological methods.Setting 
    Izaak Walton Killam Health Centre, Halifax, Nova Scotia, Canada.Patient 
    A 15-year-old boy who was diagnosed as having osteosarcoma in 2003 and died of his disease 1 year later.Intervention 
    Analysis of his 90-page journal that spanned 3 months just before his death.Main Outcome Measures 
    Identification and clustering of key themes to capture the essence of his experience.Results 
    Five main themes that surfaced during analysis of the journal were adolescent development, escape from illness, changing relationships, symptoms, and spirituality.Conclusion 
    A single case study can provide valuable information in a field such as pediatric palliative care in which the patient's perspective may be difficult to access or ascertain.
SN  - 1072-4710
M3  - doi: 10.1001/archpediatrics.2010.249
UR  - http://dx.doi.org/10.1001/archpediatrics.2010.249
ER  -