RT Journal
A1 Flavelle SC
T1 EXperience of an adolescent living with and dying of cancer
JF Archives of Pediatrics & Adolescent Medicine
JO Archives of Pediatrics & Adolescent Medicine
YR 2011
FD January 1
VO 165
IS 1
SP 28
OP 32
DO 10.1001/archpediatrics.2010.249
UL http://dx.doi.org/10.1001/archpediatrics.2010.249
AB Objective 
    To provide a unified description of an adolescent's experience of living with and dying of cancer.Design 
    Qualitative analysis using phenomenological methods.Setting 
    Izaak Walton Killam Health Centre, Halifax, Nova Scotia, Canada.Patient 
    A 15-year-old boy who was diagnosed as having osteosarcoma in 2003 and died of his disease 1 year later.Intervention 
    Analysis of his 90-page journal that spanned 3 months just before his death.Main Outcome Measures 
    Identification and clustering of key themes to capture the essence of his experience.Results 
    Five main themes that surfaced during analysis of the journal were adolescent development, escape from illness, changing relationships, symptoms, and spirituality.Conclusion 
    A single case study can provide valuable information in a field such as pediatric palliative care in which the patient's perspective may be difficult to access or ascertain.