0
We're unable to sign you in at this time. Please try again in a few minutes.
Retry
We were able to sign you in, but your subscription(s) could not be found. Please try again in a few minutes.
Retry
There may be a problem with your account. Please contact the AMA Service Center to resolve this issue.
Contact the AMA Service Center:
Telephone: 1 (800) 262-2350 or 1 (312) 670-7827  *   Email: subscriptions@jamanetwork.com
Error Message ......
Commentary |

Disability in Children and Young Adults:  The Unintended Consequences

Nancy Murphy, MD; Becky Christian, PhD, RN
Arch Pediatr Adolesc Med. 2007;161(10):930-932. doi:10.1001/archpedi.161.10.930.
Text Size: A A A
Published online

Extract

Approximately 5.6 million children in the United States have health conditions associated with moderate to severe limitations in self-care activities, and 1.5 million children are limited in their ability to walk, care for themselves, or participate in other activities.14 Because there are differing definitions of disability and its severity, national estimates of prevalence vary. However, at least several million children in the United States will never be able to care for themselves. Historically, hospital or institutional care was the only option for these children, but as a result of sociopolitical and health care changes, pervasive nursing shortages, and scarce home care resources, most of the care of children with disabilities is now provided by their parents in their homes.5 Parents are shouldering more caregiving responsibilities that, because of technological advances and increased survival rates, have become increasingly complex and long-term.5,6 National initiatives have suggested that it is preferable for all children with disabilities to be cared for at home rather than in congregate care settings.7 For example, a goal of Healthy People 20108 is to reduce the number of persons 22 years and younger in congregate care settings from 24 300 to zero. Although these initiatives and recommendations may be well intentioned, they have contributed to serious and undesirable consequences for the child, the parents, the family, and health care systems.

Sign in

Create a free personal account to sign up for alerts, share articles, and more.

Purchase Options

• Buy this article
• Subscribe to the journal

First Page Preview

View Large
First page PDF preview

First Page Preview

View Large
First page PDF preview

Figures

Tables

References

Correspondence

CME
Also Meets CME requirements for:
Browse CME for all U.S. States
Accreditation Information
The American Medical Association is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians. The AMA designates this journal-based CME activity for a maximum of 1 AMA PRA Category 1 CreditTM per course. Physicians should claim only the credit commensurate with the extent of their participation in the activity. Physicians who complete the CME course and score at least 80% correct on the quiz are eligible for AMA PRA Category 1 CreditTM.
Note: You must get at least of the answers correct to pass this quiz.
Your answers have been saved for later.
You have not filled in all the answers to complete this quiz
The following questions were not answered:
Sorry, you have unsuccessfully completed this CME quiz with a score of
The following questions were not answered correctly:
Commitment to Change (optional):
Indicate what change(s) you will implement in your practice, if any, based on this CME course.
Your quiz results:
The filled radio buttons indicate your responses. The preferred responses are highlighted
For CME Course: A Proposed Model for Initial Assessment and Management of Acute Heart Failure Syndromes
Indicate what changes(s) you will implement in your practice, if any, based on this CME course.
Submit a Comment

Multimedia

Some tools below are only available to our subscribers or users with an online account.

Web of Science® Times Cited: 11

Sign in

Create a free personal account to sign up for alerts, share articles, and more.

Purchase Options

• Buy this article
• Subscribe to the journal

Related Content

Customize your page view by dragging & repositioning the boxes below.

See Also...
Articles Related By Topic
Related Collections
PubMed Articles
Jobs
brightcove.createExperiences();