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Editorial |

Should Institutional Review Board Decisions Be Evidence-Based?

John D. Lantos, MD
Arch Pediatr Adolesc Med. 2007;161(5):516-517. doi:10.1001/archpedi.161.5.516.
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Taneja et al1 introduce their excellent and rigorous study on the stresses experienced by parents who are asked to participate in research about their recently deceased children by noting the following:

The researchers then offer definitive answers to these questions.

Parents clearly and unambiguously make decisions about their participation in studies during this difficult time. One third of parents decided not to participate in the study. Another 8% agreed to participate and then opted out once the interview began.

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