0
July 1986, Vol 140, No. 7 >
Article | July 1986

Neglect of Chronically Ill Children FREE

Paula Kienberger Jaudes, MD; Linda J. Diamond, ACSW
[+] Author Affiliations

Accepted for publication Feb 9, 1986.

Reprint requests to La Rabida Children's Hospital, East 65th Street at Lake Michigan, Chicago, IL 60649 (Dr Jaudes).


Am J Dis Child. 1986;140(7):655-658. doi:10.1001/archpedi.1986.02140210053024.
Text Size: A A A
Published online
Article
References
Comments

• Child neglect is the most prevalent form of maltreatment; more children die of neglect than of abuse. Neglect has been found to be more prevalent than physical abuse among the population of children with chronic illnesses. Data from a retrospective chart review illustrate the ways in which neglect affected 61 children with chronic illnesses. Types of neglect include medical care neglect, educational neglect, abandonment, emotional neglect, and physical neglect. The state Child Protection Agency was notified of neglect in 67 instances. Two children died subsequent to neglect. Sixteen children were abandoned; 12 of these children were abandoned in the hospital. More than half (37) of the reports resulted in change of custody for these children. All of these children suffered from short-term morbidity and some from long-term morbidity due to neglect. Neglect can be a serious and consequential problem for children with chronic illness.

(AJDC 1986;140:655-658)

REFERENCES

1 +
Kempe CH:  Changing approaches to treatment of child abuse and neglect . Child Abuse Negl 1982;;6:491-493.
2 +
Wolock I, Horowitz B:  Child maltreatment as a social problem: The neglect of neglect . Am J Orthopsychiatry 1984;;54:530-543.
3 +
Jackson AM:  Child neglect: An overview , in Perspectives on Child Maltreatment in the Mid 80's . US Dept of Health and Human Services, Office for Human Development Services, publication OHDS 84-30338, 1984;.
4 +
Highlights of the Official Child Abuse and Neglect Reporting: Annual Report . Denver, American Humane Association, 1983;.
5 +
Jaudes PK, Diamond LJ:  The handicapped child and child abuse . Child Abuse Negl 1985;;9: 341-347.
6 +
Diamond LJ, Jaudes PK:  Child abuse and the cerebral-palsied patient . Dev Med Child Neurol 1983;;25:169-174.
7 +
Shapiro J:  Family reactions and coping strategies in response to the physically ill or handicapped child: A review . Soc Sci Med 1983;; 17:913-931.
8 +
Gallagher JJ, Beckman P, Cross AH:  Families of handicapped children: Sources of stress and its amelioration . Except Child 1983;;50:10-19.
9 +
Breslau N, Staruch KS, Mortimer EA:  Psychological distress in mothers of disabled children . AJDC 1982;;136:682-686.
10 +
MacKeith R:  The feelings and behaviour of parents of handicapped children . Dev Med Child Neurol 1973;;15:524-527.
11 +
Sherman BR, Cocozza JJ:  Stress in families of the developmentally disabled: A literature review of factors affecting the decision to seek out-of-home placements . Fam Relations 1984;; 33:95-103.
12 +
Denhoff E:  Current status of infant stimulation or enrichment programs for children with developmental disabilities . Pediatrics 1981;;67: 32-37.
13 +
American Academy of Pediatrics, Committee on Children with Disabilities:  Provision of related services for children with chronic disabilities . Pediatrics 1985;;75:796-797.
14 +
Better Health for Our Children: A National Strategy, the Report of the Select Panel for the Promotion of Child Health to the United States Congress and the Secretary of Health and Human Services , US Dept of Health and Human Services, Office of Human Development Services, publication OHDS 81-5174, 81-13580, 1981;.
15 +
Ruben RJ, Newton L, Jornsay D, et al:  Home care of the pediatric patient with a tracheotomy . Ann Otol Rhinol Laryngol 1982;;91: 633-640.
16 +
Stein REK, Jessop DJ:  Does pediatric home care make a difference for children with chronic illness? Findings from the pediatric ambulatory care treatment study . Pediatrics 1984;; 73:845-853.
17 +
Polansky NA, Gaudin JM:  Social distancing of the neglectful family . Soc Serv Rev 1983;; 57:196-208.
18 +
Newacheck PW, Budetti PP, McManus P:  Trends in childhood disability . Am J Public Health 1984;;74:232-236.
19 +
Starfield B, Katz H, Gabriela A, et al:  Morbidity in childhood: A longitudinal view . N Engl J Med 1984;;310:824-829.
20 +
Wald MS:  State intervention on behalf of "neglected" children: A search for realistic standards , in Rosenheim MM (ed): Pursuing Justice for the Child . Chicago, University of Chicago Press, 1976;, pp 246-278.
21 +
Bross DC:  Medical care neglect . Child Abuse Negl 1982;;6:375-381.
22 +
Hartley EK:  Government leadership to protect children from foster-care 'drift.' Child Abuse Negl 1984;;8:337-342.
23 +
Hochstadt NJ, Gary LT:  A hospital based foster parent training program: One answer to the needs of abused/neglected chronically ill and handicapped children in the community , abstracted. The Fifth International Congress of Child Abuse and Neglect , 1984;, p 64.
24 +
Hobbs N, Perrin J, Ireys HN (eds): Chronically Ill Children and Their Families . San Francisco, Jossey-Bass Inc Publishers, 1985;.
25 +
Shyne AW, Schroeder AG: National Study of Social Service to Children and Their Families . US Dept of Health, Education, and Welfare, Office of Human Development Services, publication OHDS 78-30150, 1978;.

Figures

Tables

Interactive Graphics

Video

Country-Specific Mortality and Growth Failure in Infancy and Yound Children and Association With Material Stature

Use interactive graphics and maps to view and sort country-specific infant and early dhildhood mortality and growth failure data and their association with maternal

References

1 +
Kempe CH:  Changing approaches to treatment of child abuse and neglect . Child Abuse Negl 1982;;6:491-493.
2 +
Wolock I, Horowitz B:  Child maltreatment as a social problem: The neglect of neglect . Am J Orthopsychiatry 1984;;54:530-543.
3 +
Jackson AM:  Child neglect: An overview , in Perspectives on Child Maltreatment in the Mid 80's . US Dept of Health and Human Services, Office for Human Development Services, publication OHDS 84-30338, 1984;.
4 +
Highlights of the Official Child Abuse and Neglect Reporting: Annual Report . Denver, American Humane Association, 1983;.
5 +
Jaudes PK, Diamond LJ:  The handicapped child and child abuse . Child Abuse Negl 1985;;9: 341-347.
6 +
Diamond LJ, Jaudes PK:  Child abuse and the cerebral-palsied patient . Dev Med Child Neurol 1983;;25:169-174.
7 +
Shapiro J:  Family reactions and coping strategies in response to the physically ill or handicapped child: A review . Soc Sci Med 1983;; 17:913-931.
8 +
Gallagher JJ, Beckman P, Cross AH:  Families of handicapped children: Sources of stress and its amelioration . Except Child 1983;;50:10-19.
9 +
Breslau N, Staruch KS, Mortimer EA:  Psychological distress in mothers of disabled children . AJDC 1982;;136:682-686.
10 +
MacKeith R:  The feelings and behaviour of parents of handicapped children . Dev Med Child Neurol 1973;;15:524-527.
11 +
Sherman BR, Cocozza JJ:  Stress in families of the developmentally disabled: A literature review of factors affecting the decision to seek out-of-home placements . Fam Relations 1984;; 33:95-103.
12 +
Denhoff E:  Current status of infant stimulation or enrichment programs for children with developmental disabilities . Pediatrics 1981;;67: 32-37.
13 +
American Academy of Pediatrics, Committee on Children with Disabilities:  Provision of related services for children with chronic disabilities . Pediatrics 1985;;75:796-797.
14 +
Better Health for Our Children: A National Strategy, the Report of the Select Panel for the Promotion of Child Health to the United States Congress and the Secretary of Health and Human Services , US Dept of Health and Human Services, Office of Human Development Services, publication OHDS 81-5174, 81-13580, 1981;.
15 +
Ruben RJ, Newton L, Jornsay D, et al:  Home care of the pediatric patient with a tracheotomy . Ann Otol Rhinol Laryngol 1982;;91: 633-640.
16 +
Stein REK, Jessop DJ:  Does pediatric home care make a difference for children with chronic illness? Findings from the pediatric ambulatory care treatment study . Pediatrics 1984;; 73:845-853.
17 +
Polansky NA, Gaudin JM:  Social distancing of the neglectful family . Soc Serv Rev 1983;; 57:196-208.
18 +
Newacheck PW, Budetti PP, McManus P:  Trends in childhood disability . Am J Public Health 1984;;74:232-236.
19 +
Starfield B, Katz H, Gabriela A, et al:  Morbidity in childhood: A longitudinal view . N Engl J Med 1984;;310:824-829.
20 +
Wald MS:  State intervention on behalf of "neglected" children: A search for realistic standards , in Rosenheim MM (ed): Pursuing Justice for the Child . Chicago, University of Chicago Press, 1976;, pp 246-278.
21 +
Bross DC:  Medical care neglect . Child Abuse Negl 1982;;6:375-381.
22 +
Hartley EK:  Government leadership to protect children from foster-care 'drift.' Child Abuse Negl 1984;;8:337-342.
23 +
Hochstadt NJ, Gary LT:  A hospital based foster parent training program: One answer to the needs of abused/neglected chronically ill and handicapped children in the community , abstracted. The Fifth International Congress of Child Abuse and Neglect , 1984;, p 64.
24 +
Hobbs N, Perrin J, Ireys HN (eds): Chronically Ill Children and Their Families . San Francisco, Jossey-Bass Inc Publishers, 1985;.
25 +
Shyne AW, Schroeder AG: National Study of Social Service to Children and Their Families . US Dept of Health, Education, and Welfare, Office of Human Development Services, publication OHDS 78-30150, 1978;.

Correspondence

Submit a Letter
CME
Accreditation Information
The American Medical Association is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians. The AMA designates this journal-based CME activity for a maximum of 1 AMA PRA Category 1 CreditTM per course. Physicians should claim only the credit commensurate with the extent of their participation in the activity. Physicians who complete the CME course and score at least 80% correct on the quiz are eligible for AMA PRA Category 1 CreditTM.
Note: You must get at least of the answers correct to pass this quiz.
Clear Answers | Save For Later
You have not filled in all the answers to complete this quiz
The following questions were not answered:
Sorry, you have unsuccessfully completed this CME quiz with a score of
The following questions were not answered correctly:
Commitment to Change (optional):
Indicate what change(s) you will implement in your practice, if any, based on this CME course.
Your quiz results:
The filled radio buttons indicate your responses. The preferred responses are highlighted
For CME Course: A Proposed Model for Initial Assessment and Management of Acute Heart Failure Syndromes
Indicate what changes(s) you will implement in your practice, if any, based on this CME course.
NOTE:
Citing articles are presented as examples only. In non-demo SCM6 implementation, integration with CrossRef’s “Cited By” API will populate this tab (http://www.crossref.org/citedby.html).
Compression-Only CPR: Pushing the Science Forward
Cone
AAM 2010;304:1493-1495.
All you need to read in the other general journals
BMJ 2010;341:c5893-c1494.
Submit a Comment

Some tools below are only available to our subscribers or users with an online account.

Related Content

Customize your page view by dragging & repositioning the boxes below.

© 2013 American Medical Association. All Rights Reserved.
Powered bySilverchair Information Systems