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On My Mind |

Hearing Others’ Perspectives When We Hear, “Do Everything!”

Kirstin Hirni, MD1,2; Brian Carter, MD3,4
[+] Author Affiliations
1School of Medicine, Department of Medicine, University of Missouri–Kansas City, Truman Medical Center
2Department of Pediatrics, University of Missouri–Kansas City, Children’s Mercy Hospital
3School of Medicine, Department of Pediatrics, University of Missouri–Kansas City
4Division of Neonatology and Bioethics Center, Children’s Mercy Hospital, Kansas City, Missouri
JAMA Pediatr. 2015;169(5):423-424. doi:10.1001/jamapediatrics.2014.3699.
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I watch you hold her tiny, limp hand. She does not wrap her fingers around yours like babies her age would do. You run your hand over her wispy hair, but she does not look at you. She does not smile. A day has never passed that you have seen her whole face, absent tubes and tape. She is not normal, she is not healthy, and she never will be.

We have spent the past 5 months ordering tests, consulting the experts, and trying new medications. We have spent hours talking to you, explaining to you the prognosis, the options, and the plan. I know you have done your own research and spoken to your own consultants and even other parents whose children have the same disease. You are educated, dedicated, unyielding, and fierce. You are her mother.

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Submit a Comment
\"Do Everything\" is a differential
Posted on March 18, 2015
Kyle P. Edmonds, MD
UC San Diego Health Sciences Doris A. Howell Palliative Care Consultation Service
Conflict of Interest: None Declared
I encourage myself, my team members and our learners to always remember that the phrase \"do everything\" has a differential diagnosis and may be related to affective, cognitive, spiritual and/or family concerns. For details, please see Quill, Arnold & Back (2009). PMID: 19721022. http://www.ncbi.nlm.nih.gov/pubmed/19721022.
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