Accepted for Publication: August 28, 2012.
Published Online: April 1, 2013. doi:10.1001/jamapediatrics.2013.628
Author Contributions:Study concept and design: Rosenberg, Dussel, Kang, Feudtner, and Wolfe. Acquisition of data: Dussel, Kang, and Feudtner. Analysis and interpretation of data: Rosenberg, Dussel, Geyer, Gerhardt, Feudtner, and Wolfe. Drafting of the manuscript: Rosenberg and Dussel. Critical revision of the manuscript for important intellectual content: Rosenberg, Dussel, Kang, Geyer, Gerhardt, Feudtner, and Wolfe. Statistical analysis: Rosenberg and Dussel. Obtained funding: Wolfe. Administrative, technical, and material support: Kang, Gerhardt, and Feudtner. Study supervision: Dussel, Kang, Geyer, and Wolfe.
Conflict of Interest Disclosures: None reported.
Funding/Support: This project was part of the PediQUEST study and funded by National Institutes of Health/National Cancer Institute grant 1K07 CA096746-01, a Charles H. Hood Foundation Child Health Research Award, and an American Cancer Society Pilot and Exploratory Project Award in Palliative Care of Cancer Patients and Their Families. Dr Rosenberg was supported by Ruth L. Kirschstein National Research Service Award T32CA009351.
Additional Contributions: We thank the families for their willingness to participate in the study and Sarah H. Aldridge, CPNP-AC, CPHON, Lindsay Teittinen, ARNP, Janis Rice, MPH, Karen Carroll, BS, and Karina Bloom, BS, for work on enrollment and data collection. We thank Noel Weiss, MD, DrPH, for thoughtful reviews and perspectives of our analyses and findings.