Accepted for Publication: September 26, 2012.
Published Online: March 11, 2013. doi:10.1001/jamapediatrics.2013.943
Author Contributions:Study concept and design: Lyon, Jacobs, Briggs, and Wang. Acquisition of data: Jacobs. Analysis and interpretation of data: Lyon, Cheng, and Wang. Drafting of the manuscript: Lyon and Jacobs. Critical revision of the manuscript for important intellectual content: Lyon, Jacobs, Briggs, Cheng, and Wang. Statistical analysis: Cheng and Wang. Obtained funding: Lyon. Administrative, technical, and material support: Lyon and Jacobs. Study supervision: Lyon, Briggs, and Wang.
Conflict of Interest Disclosures: None reported.
Funding/Support: This pilot study was funded by grant PEP-10-171-01-PCSM from the American Cancer Society (Dr Lyon), the development and adaptation phase was funded by the Research Advisory Award from the Children's National Medical Center (Dr Lyon), and both ethics consultation spaces for meeting with families were funded by the Clinical and Translational Science Institute at Children's National grant UL1RR031988.
Disclaimer: The content is solely the responsibility of the authors and does not necessarily represent the official views of the American Cancer Society or Children's National Medical Center.
Additional Contributions: Jessica Gaines and her mother Cynthia Brawner-Jackson, as well as the study families and the community, helped develop this protocol. The following RAs worked with the study families: Jessica Gaines, Joy Lere, MA, MPsy, Jessica Greenberg, BA, and Brittney Lee, BA. Jennie Perez, CCRP, provided help with institutional review board modifications. Saeid Goudarzi, BS, provided help with data management, and Annie Fulton, BS, provided help creating Teleforms. Kathleen Ennis-Durstine, MDiv, BCCI, provided spiritual/religious consultations, and Tomas Silber, MD, provided ethics consultations. Debbie LaFond, APC, and Gene Hwang, MD, as well as other health care professionals, assisted with this study.